CDG Connect was created to develop a comprehensive database of individuals with Congenital Disorders of Glycosylation (CDG). It allows patients, family members, and researchers to gather information in a safe and confidential way. Participation is important to collect critical information to understand the history and progression of CDG, to make it easier for researchers to study CDG, for patients and families to learn about CDG treatment options, and for advocates to speak on behalf of the CDG community.This Patient Insights Network will allow doctors and researchers to gain valuable data that can be used toward future CDG breakthroughs and optimize the search for better treatments for children and adults affected by CDG.