The SWF funded and launched the online Sturge-Weber International Registry in order to accelerate translational efforts (moving from basic laboratory research to meaningful health outcomes, such as therapies and treatments) related to Sturge-Weber and birthmarks. The registry contains consented clinical data (that was previously stored in a server based software platform) collected in some cases since 1987. This data has been instrumental in engaging clinicians and scientists to study the syndrome and been acknowledged in highly respected medical journals. The data was also a key factor in many researchers obtaining National Institutes of Health (NIH) grant awards.