The Lymphangiomatosis and Gorham's Disease Alliance (LGDA) established the International LGDA Registry for Lymphatic Malformations as an internet-based information database for researchers and clinicians, as well as an information network for individuals with lymphangiomatosis and Gorham's disease and their families as a means to achieving its ultimate goal of developing cures for these diseases. The registry is also open to individuals affected by a number of other lymphatic malformations and osteolytic bone diseases.