In order to accelerate translational efforts (moving from basic laboratory research to meaningful health outcomes, such as therapies and treatments) related to cardio-facio-cutaneous syndrome, CFC International is launching their patient Registry. The registry is important for characterizing and understanding CFC syndrome better. Not only will the registry provide valuable information for families and doctors to make the best care decisions possible, it will be important to help researchers decide what are the most important challenges to address. The registry will also help scientists find out if there are any CFC syndrome patients who might be a good match for their research studies.